Congressman Gregory W. Meeks AssistsLocal Family with Food Drug Administration'sCompassionate Use of Baby Formula for Two Year Old withIncurable Metabolic Disorder
(JAMAICA, NEW YORK)– Congressman Gregory W. Meeks (D-NY) announces Food and Drug Administration’s (FDA) decision to allow compassionate use of the formula XGLY Analog from Europe as a determined supplemental food request for his constituent baby Jayden Gomez, a Southeast Queens two year old, diagnosed with non-ketotic hyperglycinemia (NKH), a rare metabolic disorder and seizure disorder.
Jayden’s disorder is a metabolic defect that has made his body unable to digest and breakdown a protein called glycine. This protein builds up in his body and causes damage to all of his organs, especially his brain. Because of Jayden’s condition he cannot eat regular foods containing this protein. Meeks and local medical professionals will discuss this case and the prospects of this life saving decision at the presser on Monday, March 29, at 11:00am in his Jamaica District Office.
WHO: Congressman Gregory Meeks, Jayden Gomez, parents Juan and Sandra Gomez and local medical professionals.
WHAT: Press Conference
WHEN: Monday, March 29, 2010 – 11:00AM
WHERE: Office of Congressman Gregory W. Meeks
153-01 Jamaica Avenue, 2nd Floor
Jamaica, NY